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Job summary
An exciting opportunity has become available within the National PNH Service for a Band 4 Data Coordinator. This is a full-time, permanent role (37.5 hours per week). We are looking for a highly motivated and organised individual to join the Paroxysmal Nocturnal Haemoglobinuria (PNH) national service working as the PNH data coordinator. This is a unique position managing the National PNH Registry. Working closely with key stakeholders and also managing service data as a part of the role. The service is commissioned by NHS England to manage and provide treatment and support for patients with PNH. The successful candidate will work closely with the clinical team and the B5 Data Manager to provide comprehensive data management alongside managing the registry.
Main duties of the job
Working for the National PNH Service at LTHT offers the chance to support a highly specialised, nationally recognised service that makes a real difference to patients with a rare and complex condition. The work is varied and intellectually engaging, involving close collaboration with expert multidisciplinary teams, managing complex pathways and ensuring a high standard of patient experience within a specialist setting. The services focus on innovation, research, and national standards also means administrators are part of a forward-thinking environment where processes are continually improved. In addition, LTHT as an organisation is one of the largest teaching hospital trusts in Europe, offering excellent opportunities for career development, job stability and access to learning and progression. Its strong reputation, supportive culture and commitment to excellence in patient care make it an attractive place to build a long-term career while contributing to a service with national importance.
About us
The Leeds Teaching Hospitals NHS Trust is committed to delivering the highest quality and safest treatment and care to every patient, every time. Our vision is to provide the highest quality specialist and integrated care. We will do this through delivery of our multi-year goals and strategic priorities, which you can read about on this page. Central to it all is The Leeds Way our values and behaviours that are at the heart of everything we do.
Details
- Date posted: 22 July 2026
- Pay scheme: Agenda for change
- Band: Band 4
- Salary: £28,392 to £31,157 a year
- Contract: Permanent
- Working pattern: Full-time
- Reference number: 001638
- Job locations: St James’s University Hospital, Leeds, West Yorkshire, LS9 7TF, United Kingdom
Job responsibilities
For questions about this job, contact:
Name: Jacqueline Linn Position: PNH Data Manager Email: jacqueline.linn@nhs.net
Phone number: 0113 2067813 Shortlisting Date: 06/08/16 Interview Date: 13 08 26
What you will bring to the role
The successful candidate must be able to communicate effectively at all levels, plan their own workload and work effectively within a multidisciplinary team. Good working knowledge of Microsoft Office is essential, and knowledge of NHS administrative systems would be desirable. Knowledge of Haematological terms would be an advantage but is not essential. The candidate will be responsible for coordinating the Leeds site of the PNH Registry – a prospective, multi-centre, multi-national, observational registry compiling data on the natural history and management of individuals diagnosed with PNH. The successful candidate will work closely alongside the Service Coordinator/Data Manager, 5 consultants, a specialist registrar, a specialist doctor, 4 clinical nurse specialists and 2 healthcare assistants and will become a key member of the supporting administrative team.
About Leeds Teaching Hospital NHS Trust
Our Trust values
The Leeds Way is working together to support each other and deliver the best possible care to patients.
We are….
Responsible Open and Honest One Team Kind
Our Trust priorities
Our purpose: Excellent, safe and sustainable care for every patient every time
Our priorities:
People Improvement and Innovation Partnerships Outcomes
To comply with UK Government regulations on Skilled Worker sponsorship, Leeds Teaching Hospital NHS Trust is unable to provide sponsorship to applicants who do not meet the eligibility criteria or the salary threshold concessions set out under the Skilled Worker visa route. Please take this into consideration before submitting your application. Full guidance on these concessions, including details of who may qualify, can be found here.
We reserve the right to close this advert early if we receive a high number of suitable applications.
Person specification
Experience
Essential
- To view the Person Specification and Job Description, please select Apply.
Qualifications
Essential
- To view the Person Specification and Job Description, please select Apply.
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Applying for this NHS job
This advert is for PNH Data Coordinator with Leeds Teaching Hospitals NHS Trust in Leeds, North East and Yorkshire, England. It is listed as a Band 4 Administrative and IT role. The advertised salary is £28,392 to £31,157 a year. The contract type is Permanent. The application deadline is 06 Aug 2026.
Before you apply, compare the job description with the person specification and mirror the employer's essential criteria in your supporting information. Use the vacancy title, employer, location, salary, contract type, closing date and posted date (22 Jul 2026) to decide whether this role fits your current NHS job search. If the employer can close applications early, prepare the application before the stated deadline rather than waiting for the final day.
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