National Inherited Cardiac Conditions Co-ordinator

Job overview

This role, funded by the British Heart Foundation (BHF), is to provide operational leadership to the roll out of the NHS Coronial Sudden Unexpected Death and Sudden Cardiac Arrest pathways across England.

The successful candidate will be hosted at St George’s University Hospitals NHS Foundation Trust and will work closely with the clinical lead for the programme, Professor Elijah Behr, as well as with the established BHF programme management team and Genomic Medicine Service (GMS) clinical leads.

This is a fixed term post for 18 months (until October 2027) although ongoing funding streams will be explored.  The role will be to help coordinate effective pathways across England by working with the regional ICC coordinators, coronial system, national charities and other clinicians involved in the work (cardiac and intensive care teams, genetic consultants, nurses and genetic counsellors).

Main duties of the job

This in amazing opportunity to support a nationwide team who are helping to improve care for patients and families who have lost someone due to sudden cardiac death.

The programme aims to ;

• Establish consistent pathology referral practice for SUD including use of expert pathology.
• Establish routine tissue retention for histopathology and DNA extraction in suitable SUD cases.
• Establish coronial and NHS communication pathways for referrals of families for genetic testing and clinical evaluation.
• Establish mechanisms for standardised post-mortem genetic testing and reporting via NHS Genomic Laboratory Hubs to support timely evaluation and cascade testing of families.
• Develop and disseminate nationally applicable best practice pathways for NHS adoption, employing a toolkit approach.
• Ensure the engagement and input of patient and support groups with an interest in inherited cardiac disorders.

Detailed job description and main responsibilities

This job will be hosted by St George's however the post holder will be expected to across the country both in person and remotely to support those based within different centres to achieve the programme aims.

A full and detailed job description and person specification is provided