Motor Neuron Disease Coordinator

Job overview

University Hospital Southampton NHS Foundation Trust is delighted to offer a fantastic opportunity to work with us.

Job Title: Motor Neuron Disease Coordinator

Contract Type: Fixed Term

Contract Length: 24 months

Purpose for Fixed Term: Short term funding

Main duties of the job

This is an exciting opportunity to join our team for a unique opportunity as a Band 7 allied health professional to work within the friendly, supportive Southampton MND Care Centre team. The post holder will work with the existing Band 8 Lead MND Care Centre AHP coordinator. The post holder will work in collaboration with a diverse range of acute, community and third sector colleagues, including neurology, respiratory, nutrition, community therapies, pallia, community nursing and palliative care, across the Wessex Region to support and develop expert MND Care. The successful candidate will hold a caseload specialising in MND, attend specialist MND clinics, participate in the community MND MDT meetings, contribute to the MND improvement and development plan, including audit of the NICE standard and offer informal and formal teaching opportunities relating to MND. The Southampton MND Care has a highly successful partnership model with the MND Association, who continue work to fund part of our well regarded service.

This is a unique opportunity to develop and expand your skills in a care coordination role, whilst making a real difference to the care of people living with MND. You will receive supervision and mentorship from both the Lead MND Coordinator and colleagues within the Wessex Neurology Service to develop your skills and expertise within this role.

Detailed job description and main responsibilities

In this role, your key responsibilities will include

• Hold a clinical caseload of MND patients, working with Lead MND Coordinator and the wider regional team to provide supportive care.
• Act as single point of contact for patients with MND and their families within the activities of the Care Centre
• Undertake the established post diagnostic support visit to patients recently diagnosed with MND, offering post diagnostic advice, emotional support, clinical advice relating to NICE guidance and actioning referrals to the wider MDT for ongoing support.
• Attend and offer MND coordination support within the specialist regional MND clinic structure.
• Attend and participate in MND coordinator led MDTs across the region.
• Participate in the MND service objectives and clinical improvement plan, meeting the conditions of the MND Association grant, participating in management review meetings, , participating in the regular NICE audit and taking responsibility for delivery for defined service objectives.
• Represent the MND Coordination Team at relevant meetings.
• Provide MND specific training to colleagues at UHS and the wider regional team, offer advice and support regarding MND care as required.
• Collaborate within the service to support the MND research pathway and Senior MND Research Nurse.

Applicant requirements

You must have appropriate UK professional registration.

This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.