Roald Dahl Children with Medical Complexities Nurse Specialist

Job overview

Main duties of the job

To provide leadership and coordination of the acute patient pathway for children with medical complexity (CMC). Ensure a high-quality service meeting the needs of the child and their family.

Work collaboratively with all stakeholders including MDTs, CNSs, clinical teams, Consultants, therapists, and community nursing teams across the Trust/Health Board.  Coordinate multidisciplinary assessments meeting the physical, psychological, emotional, and spiritual needs of the CYP and their family at times of stability and crisis and develop strategies to address these needs with the multidisciplinary team. Work closely with ward-based nursing and medical colleagues from time of admission to provide a coordinated, seamless, individualized approach, ensuring that families are fully informed regarding care planning and ongoing arrangements to meet their child's clinical needs.

Provide visible and accessible advice and practical support, including teaching when required, to relatives of CMC, acting as a contact point for families throughout the patient’s journey.

Act as an ambassador for the Roald Dahl Marvellous Children’s charity. Act as a voluntary representative of the charity when required to represent and promote the role and links between the NHS Trust and RDMCC. Join and contribute to RDMCC’s internal communication platform (Workplace from Meta) with encouragement from the NHS Trust.

Detailed job description and main responsibilities

For a full list of responsibilities and tasks associated with this role, please refer to the job description/person specification attached to this vacancy.