PNH Service Co-ordinator

Job overview

We are looking for an organised and enthusiastic individual to join our specialist team looking after patients with Paroxysmal Nocturnal Haemoglobinuria (PNH) within Haematology Services.

The post holder will be responsible for support in providing an effective administrative and secretarial service to the PNH team.

Main duties of the job

The role involves a wide variety of responsibilities including secretarial duties and clinic administration as well as liaising with external organisations such as NHSE, homecare providers and Pharmaceutical companies. Attention to detail is paramount for this role. The successful applicant will have the opportunity to work directly with a wide variety of professionals within a friendly, hardworking and supportive team. You will also be the first port of call for the patients and be actively involved in organising patient events such as patient support groups.

Detailed job description and main responsibilities

• Monitor monthly finance reports from funding body.
• Update and maintain data for the PNH registry on a daily basis
• Prepare PNH registry patient paperwork for weekly clinics
• Provide service updates to the external funding body on a monthly basis
• Use excel spreadsheets to create and maintain databases
• Organise and attend bi-annual service meetings; Preparing and presenting demographical patient information
• Prepare and attend PNH MDT Meetings once a month and keep a record of patients discussed and ensure that outcomes are recorded
• Liaise with Homecare Nursing Service to resolve any patient queries and maintain a high standard of care
• Assist with clinical trials and service audits as directed by the lead consultant.
• Support the management for PNH Clinicians diary & travel schedules as required
• Provide secretarial support to the PNH team