Motor Neurone Disease Care Co-ordinator

Job overview

The Peninsula MND Care and Research Network are looking for a new care co-ordinator to join their team.

We are looking to recruit a new band 7 person to work in the MND team covering parts of Devon (depending on their home location). As well as managing a caseload of MND patients autonomously we hope that this role will enable the person to develop their skills and ultimately take over some of the clinical management of the service, once confident with caseload work. It involves visiting patients in their homes, running MND MDT clinics, MDT meetings as well as arranging assessments and onward referrals and overall co-ordinating the care of people with Motor Neurone disease. You will work closely with the MND Association who partly fund this post.It is a great opportunity for someone with excellent clinical skills, communication skills and presentation skills, who is considering having an element of their job which is more managerial in the future and ultimately to help shape MND care in the South West for the next few years. Innovation, enthusiasm and passion is a necessity.

You will also be involved in clinical research and education as well as audit.

Main duties of the job

• To independently support a large caseload of people with highly complex emotional needs and multi-faceted physical symptoms in line with specialist guidelines for MND Gold Standard care.
• To facilitate the MDT model adopted by the MND Peninsula Care and Research Network, via MDT clinics, MDT team meetings.
• To be the Devon wide clinical specialist for people with motor neurone disease, providing support and advice for teams of professionals caring for MND  patients.
• Provide and develop education to the wider MDT teams across community, hospital, hospice and care home settings locally and in time nationally.
• Provide information, support, signposting and education to patients with MND and carers
• To support patient and carers through their journey from diagnosis to end of life care .
• To gain knowledge of Motor Neurone Disease Association and their role in supporting patients and professionals.
• To work with MND Peninsula Care and Research Network specialist research nurse in developing clinical research for patients with MND and maximising involvement in research
• To gain appropriate skills to ultimately take on clinical management for the service along with MND Service co-ordinator who will take on the service aspects including sharing of strategic lead. Working closely with current lead to learn necessary clinical skills/knowledge

Detailed job description and main responsibilities

see main job description

To independently support a large caseload of people with highly complex emotional needs and multi-faceted physical symptoms in line with specialist guidelines for MND Gold Standard care, ensuring high quality care is maintained. · To facilitate the MDT model adopted by the MND Peninsula Care and Research Network, via MDT clinics, MDT team meetings and other informal methods · To be the Devon wide clinical specialist for people with motor neurone disease, providing support and advice for teams of professionals caring for people with the disease · Provide and develop education to the wider MDT teams across community, hospital, hospice and care home settings locally and in time nationally.