Clinical Nurse Specialist (Epidermolysis Bullosa)

Job overview

We are looking for an experienced nurse to join the highly specialised nursing team and national service supporting adults with the genetic skin disorder, Epidermolysis Bullosa (EB). The post holder will be a member of a larger, well-established MDT at the world-renowned St Johns Institute of Dermatology within Guy’s & St Thomas Hospital, London.

The post holder will develop, implement and evaluate a seamless specialist Epidermolysis Bullosa (EB) service, ensuring that patients receive the highest standard of clinical care. They will act as a lead specialist and demonstrate a high level of expertise within the EB service; providing specialist advice, education and support to health care professionals and patients. The post holder will be responsible for contributing to the ongoing development of clinical practice, research and standards of care within the service.

This post does not attract London High Cost Allowance, as all travel and subsistence costs are reimbursed.

Closing date: 21.05.2025 at Midnight

Interview date: 11.06.2025

Main duties of the job

The post holder will be responsible for managing their own caseload of complex patients and provide hospital inpatient, outpatient and other clinical support.

A core aspect of the nursing service involves monitoring and supporting people with EB in their homes. Therefore, extensive travel throughout the UK and flexibility in working patterns is essential.

Applicants must be experienced registered nurses and have practiced at a minimum band 6 or above. We are looking for someone who has experience in tissue viability, palliative care, dermatology, long term or life limiting conditions or other transferrable clinical skills.

Experience of EB is desirable but not essential.

They must be able to work autonomously, and demonstrate resilience and determination.

The successful candidate must hold a full UK driving licence and access to a car is essential.

Detailed job description and main responsibilities

Clinical Leadership and Managerial

• To work autonomously, managing a caseload of patients within the specialty whilst working as part of the multidisciplinary team, delivering individualised and personalised direct patient care
• Be responsible for assessing and recognising emergencies in the speciality. To interpret information and take appropriate action and to lead others to do the same.
• Act as an advocate for patients within the department, to ensure a patient orientated approach to the delivery of care and to meet standards within the NHS Plan and other relevant guidelines.
• Ensure that patients receive high quality clinical care and a good patient experience, having regard for their customs, religious beliefs and doctrines.

Quality

• Facilitate a high quality, cost effective specialist service through monitoring and audit and other quality initiatives agreed by the Trust
• Lead on and participate in key developments relating to the specialty so that high quality patient focused services are promoted.
• Enhance the interface between staff, patients, community staff and visit.
• Attend and participate in multi-professional team meetings.

Education and Training

• Act as a facilitator/mentor/preceptor to student nurses and others.
• Assess own educational needs and take steps to keep up to date with clinical and nursing developments in line with requirements of the Nursing & Midwifery Council.
• Develop the partnership between the Trust and academic staff at local Universities involved in pre-registration and post-registration nursing and medical programmes.

Research and Development

• Promote and undertake nursing research and to publish the outcome, updating own knowledge to promote excellence in clinical practice.
• Utilise research findings in the delivery of specialist patient care, developing new ways of working and to disseminate relevant information to staff. Management and Leadership
• Provide a leadership role model and demonstrate expert knowledge and high standards of clinical practice.
• Develop the role according to patients changing needs and research findings, within the resources available.
• Maintain accurate records of the clinical service and ensuring that confidentiality of information is adhered to Organise own work and manage own caseload and practice, identifying and maintaining supportive networks for self and other staff members

General

• Act in accordance with the Nursing & Midwifery Council  Code of Professional Conduct and Scope of Professional Practice and be accountable for his/her actions at all times.
• Maintain up-to-date records. Ensuring that confidentiality is respected and that the standards for “Record Keeping” are met.

Full Job description and Person Specification available