# PNH Data Coordinator > NHS job listing from Job Clerk for Leeds Teaching Hospitals NHS Trust. ## Canonical URLs - **HTML:** https://www.jobclerk.com/job/pnh-data-coordinator/81e1f04a-074f-42e0-8ebe-446b78f3a7ac - **Markdown:** https://www.jobclerk.com/job/pnh-data-coordinator/81e1f04a-074f-42e0-8ebe-446b78f3a7ac.md ## Summary - **Status:** Live - **Employer:** Leeds Teaching Hospitals NHS Trust - **Town:** Leeds - **Region:** North East and Yorkshire - **Country:** England - **Profession:** Administrative and IT - **Grade:** Band 4 - **Salary:** £28,392 to £31,157 a year - **Contract type:** Permanent - **Employment type:** Full-time - **Closing date:** 2026-08-06T23:59:00.000Z - **Posted:** 2026-07-22T14:56:49.057Z - **Source information URL:** https://www.jobs.nhs.uk/candidate/jobadvert/C9298-26-0640?employerCode=C9298 - **Application URL:** https://vacancies.leedsteachinghospitals.jobs/Job/JobDetail?jobid=1640&source=JobtrainNHSJobs - **Employer website:** https://www.leedsth.nhs.uk ## Job Content ### Job summary An exciting opportunity has become available within the National PNH Service for a Band 4 Data Coordinator. This is a full-time, permanent role (37.5 hours per week). We are looking for a highly motivated and organised individual to join the Paroxysmal Nocturnal Haemoglobinuria (PNH) national service working as the PNH data coordinator. This is a unique position managing the National PNH Registry. Working closely with key stakeholders and also managing service data as a part of the role. The service is commissioned by NHS England to manage and provide treatment and support for patients with PNH. The successful candidate will work closely with the clinical team and the B5 Data Manager to provide comprehensive data management alongside managing the registry. ### Main duties of the job Working for the National PNH Service at LTHT offers the chance to support a highly specialised, nationally recognised service that makes a real difference to patients with a rare and complex condition. The work is varied and intellectually engaging, involving close collaboration with expert multidisciplinary teams, managing complex pathways and ensuring a high standard of patient experience within a specialist setting. The services focus on innovation, research, and national standards also means administrators are part of a forward-thinking environment where processes are continually improved. In addition, LTHT as an organisation is one of the largest teaching hospital trusts in Europe, offering excellent opportunities for career development, job stability and access to learning and progression. Its strong reputation, supportive culture and commitment to excellence in patient care make it an attractive place to build a long-term career while contributing to a service with national importance. ### About us The Leeds Teaching Hospitals NHS Trust is committed to delivering the highest quality and safest treatment and care to every patient, every time. Our vision is to provide the highest quality specialist and integrated care. We will do this through delivery of our multi-year goals and strategic priorities, which you can read about on this page. Central to it all is The Leeds Way our values and behaviours that are at the heart of everything we do. ### Details - Date posted: 22 July 2026 - Pay scheme: Agenda for change - Band: Band 4 - Salary: £28,392 to £31,157 a year - Contract: Permanent - Working pattern: Full-time - Reference number: 001638 - Job locations: St James’s University Hospital, Leeds, West Yorkshire, LS9 7TF, United Kingdom ### Job responsibilities For questions about this job, contact: Name: Jacqueline Linn Position: PNH Data Manager Email: jacqueline.linn@nhs.net Phone number: 0113 2067813 Shortlisting Date: 06/08/16 Interview Date: 13 08 26 What you will bring to the role The successful candidate must be able to communicate effectively at all levels, plan their own workload and work effectively within a multidisciplinary team. Good working knowledge of Microsoft Office is essential, and knowledge of NHS administrative systems would be desirable. Knowledge of Haematological terms would be an advantage but is not essential. The candidate will be responsible for coordinating the Leeds site of the PNH Registry – a prospective, multi-centre, multi-national, observational registry compiling data on the natural history and management of individuals diagnosed with PNH. The successful candidate will work closely alongside the Service Coordinator/Data Manager, 5 consultants, a specialist registrar, a specialist doctor, 4 clinical nurse specialists and 2 healthcare assistants and will become a key member of the supporting administrative team. About Leeds Teaching Hospital NHS Trust Our Trust values The Leeds Way is working together to support each other and deliver the best possible care to patients. We are…. Responsible Open and Honest One Team Kind Our Trust priorities Our purpose: Excellent, safe and sustainable care for every patient every time Our priorities: People Improvement and Innovation Partnerships Outcomes To comply with UK Government regulations on Skilled Worker sponsorship, Leeds Teaching Hospital NHS Trust is unable to provide sponsorship to applicants who do not meet the eligibility criteria or the salary threshold concessions set out under the Skilled Worker visa route. Please take this into consideration before submitting your application. Full guidance on these concessions, including details of who may qualify, can be found here. We reserve the right to close this advert early if we receive a high number of suitable applications. ## Person Specification ### Experience **Essential** - To view the Person Specification and Job Description, please select Apply. ### Qualifications **Essential** - To view the Person Specification and Job Description, please select Apply. ## Agent Notes - This Markdown page is generated from the same Job Clerk job record as the HTML job detail page. - Use the canonical HTML URL for user-facing references. - Use the application URL when the user wants to apply on the source NHS site.