# Motor Neuron Disease Coordinator

> NHS job listing from Job Clerk for University Hospital Southampton NHS Foundation Trust.

## Canonical URLs

- **HTML:** https://www.jobclerk.com/job/motor-neuron-disease-coordinator/50e6ec58-60ce-4faa-9bb5-030f6511b999
- **Markdown:** https://www.jobclerk.com/job/motor-neuron-disease-coordinator/50e6ec58-60ce-4faa-9bb5-030f6511b999.md

## Summary

- **Status:** Live
- **Employer:** University Hospital Southampton NHS Foundation Trust
- **Location:** Southampton General Hospital
- **Workplace type:** onsite
- **Profession:** Coordinator (discipline unspecified)
- **Grade:** Band 7
- **Salary:** £49,387 - £56,515 Per annum - Pro rata
- **Contract type:** 24 months (24 months fixed term)
- **Employment type:** Part time - 30 hours per week
- **Closing date:** 2026-10-30T23:59:00.000Z
- **Posted:** 2026-10-16T12:54:47.786Z
- **Source information URL:** https://www.healthjobsuk.com/job/-v8374028
- **Application URL:** https://apps.trac.jobs/job-advert/8374028?ShowJobAdvert=&feedid=9002
- **Employer website:** https://www.uhs.nhs.uk

## Job Content

### Job overview

University Hospital Southampton NHS Foundation Trust is delighted to offer a fantastic opportunity to work with us.

Job Title: Motor Neuron Disease Coordinator

Contract Type: Fixed Term

Contract Length: 24 months

Purpose for Fixed Term: Short term funding

### Main duties of the job

This is an exciting opportunity to join our team for a unique opportunity as a Band 7 allied health professional to work within the friendly, supportive Southampton MND Care Centre team. The post holder will work with the existing Band 8 Lead MND Care Centre AHP coordinator. The post holder will work in collaboration with a diverse range of acute, community and third sector colleagues, including neurology, respiratory, nutrition, community therapies, pallia, community nursing and palliative care, across the Wessex Region to support and develop expert MND Care. The successful candidate will hold a caseload specialising in MND, attend specialist MND clinics, participate in the community MND MDT meetings, contribute to the MND improvement and development plan, including audit of the NICE standard and offer informal and formal teaching opportunities relating to MND. The Southampton MND Care has a highly successful partnership model with the MND Association, who continue work to fund part of our well regarded service.

This is a unique opportunity to develop and expand your skills in a care coordination role, whilst making a real difference to the care of people living with MND. You will receive supervision and mentorship from both the Lead MND Coordinator and colleagues within the Wessex Neurology Service to develop your skills and expertise within this role.

### Detailed job description and main responsibilities

In this role, your key responsibilities will include

- Hold a clinical caseload of MND patients, working with Lead MND Coordinator and the wider regional team to provide supportive care.
- Act as single point of contact for patients with MND and their families within the activities of the Care Centre
- Undertake the established post diagnostic support visit to patients recently diagnosed with MND, offering post diagnostic advice, emotional support, clinical advice relating to NICE guidance and actioning referrals to the wider MDT for ongoing support.
- Attend and offer MND coordination support within the specialist regional MND clinic structure.
- Attend and participate in MND coordinator led MDTs across the region.
- Participate in the MND service objectives and clinical improvement plan, meeting the conditions of the MND Association grant, participating in management review meetings, , participating in the regular NICE audit and taking responsibility for delivery for defined service objectives.
- Represent the MND Coordination Team at relevant meetings.
- Provide MND specific training to colleagues at UHS and the wider regional team, offer advice and support regarding MND care as required.
- Collaborate within the service to support the MND research pathway and Senior MND Research Nurse.

### Applicant requirements

You must have appropriate UK professional registration.

This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.

## Person Specification

### Trust Values

**Essential**

- Patient First
- Working Together
- Always Improving

### Special requirements of the post

**Essential**

- Ability to have a flexible approach to working hours including extended working day as agreed with line manager
- Ability to cover "out of hours" and weekend working occasionally
- Full driving licence and use of vehicle for travel to regional clinics

### Physical requirements of the post

**Essential**

- Health and physical abilities sufficient for the post (if necessary with reasonable adjustments with respect to the Equality Act/Disability Discrimination Act).

### Qualifications / training required

**Essential**

- Current Registration with HCPC.
- Degree or equivalent in relevant AHP profession
- Masters level or evidence of equivalent post-graduate training in defined speciality.
- Evidence of commitment to relevant ongoing training and development

**Desirable**

- Clinical supervisory skills course
- Member of relevant professional organisation and relevant specialist groups
- Appraisal training
- Evidence of management qualification/ development e.g. Foundation Management course

### Previous or relevant experience necessary

**Essential**

- Evidence of extensive knowledge and highly specialist expertise in relevant specialist area
- Recent experience working as a clinical specialist in relevant clinical area
- Evidence of ability to act as an expert within a multi-professional team setting.
- Experience of presentations and public speaking.
- Evidence of project planning and audit delivery
- Demonstration of understanding of clinical governance and its implications for service delivery.
- Experience mentoring or supervising students, assistants or junior staff.
- Experience and involvement in student training
- IT and keyboard skills e.g. Microsoft word

**Desirable**

- Experience of leading or co-ordinating audit or research work.
- Evidence of generic skills required for service development i.e. report writing, policy development and implementation.
- Ability to undertake appraisals and KSF reviews for band 4, 5, and 6 staff.

## Documents

- [job description (pdf, 216.7kb)](https://www.healthjobsuk.com/documents?vdoc=10702023)
- [person specification (pdf, 128.7kb)](https://www.healthjobsuk.com/documents?vdoc=10702024)

## Agent Notes

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